Aims: Tissue banks, also known as biobanks or biorepositories, are valuable resources allowing the causes and mechanisms of cancer to be studied, and more effective treatments developed. However there remains much debate about the regulatory structure of tissue banks, especially in terms of how samples should be used. The limited studies to date among the general public, potential donors and actual (cancer) tissue bank donors (1, 2), have generally shown high levels of support for tissue banks. The aim of this study was to investigate the views and preferences of a sample of haematological cancer patients on the topic of tissue banking.

Methods: Patients presenting for an outpatient appointment at one of three haematological cancer clinics in Australia were invited to complete a baseline and follow-up survey, one month apart. Demographics, diagnosis and treatment information were collected at baseline. Participants were asked a series of questions regarding their views on tissue banking at follow-up. 

Results: 213 participants completed both the baseline and the follow-up survey. Overall, support for tissue banking was very high, with 92% (n=196) of participants indicating they would be willing to donate tissue for research if asked. Preferences for a tissue bank consent model (consent given once vs. consent for each new study vs. individual preference) were more varied.

Conclusions: There is overwhelming support for tissue bank donation amongst a sample of haematological cancer patients; however their views regarding consent models for tissue sample use are more heterogeneous. These data can inform debate about the regulatory structure of tissue banks.